Lately i've increasingly been living in the fear that I'll wake up with a migraine. Not your my head hurts suuuper bad so ill just lay down with a pillow on it, i'm talking puking in a bucket every three minutes can't hear because my ears are ringing so loud, double vision type migraine. This has been happening at least twice a week. I see a neurologist but so far all he's given me is a bunch of pills that don't work and make me feel like i'm on fire. I am completely nonresponsive to triptans. The day before yesterday he gave me injections in the back of my head that turned my scalp numb but my actual headache worse. My hips are always sore from getting shots to abort my migraines, it's expensive and incredibly frustrating to have to go to the dr so much but that's the only way i know so far that I can get relief.
My neurologist said he's not sure what else to do with me besides enroll me in a headache clinic and possibly give me botox. I feel like giving up on ever feeling better again. Mentally I'm not doing good either which aggravates my migraines which aggravates my mental illness. I'm on one terrible merry-go-round. My quality of life would be zilch if I didn't have my son to think about and brighten my day. There's no way i could work right now, my migraines are ruining my life. I've tried ice, heat, hot showers, cold showers, staying away from hard cheeses and yogurts, drinking excesssive amounts of water, drinking alot of caffeine, multiple medications that have all been ineffective. Living like this is not living. I need some help in a major way but i have no idea where else to turn.
This sounds terrible. Sorry you are going through it. Are they doing things not only to medicate, but diagnose what the underlying problems are? Hoping for you some clear space.
ReplyDeleteOur best,
Anns
I'm so sorry. Migraines are so awful.
ReplyDeleteI'd see another specialist and get another opinion. My older sister has been plagued with migraines most of her life, I'm not sure how she copes, they really disrupt her life. Travel is difficult because time zone changes, and disruption to sleeping and eating timetables mean another migraine is on the way...miserable stuff. Our paternal grandmother also had migraines most of her life and got some relief after menopause...
ReplyDeleteMy sister is highly strung, she stresses very easily and I suspect that makes it worse...she got some relief when she started meditating, initially it made the headaches worse, but then it started to help...
My sister has been taking expensive medication for some time...that's the other issue, you can get rebound headaches from all of the medication.
I hope you find some relief, this is a serious problem and not enough is being done about it, we have a few cancers, including one that was always rare, and they get most of the money and attention.
Deb